Ma ke kula ʻo FEC Santa Joaquina de Vedruna ma Madrid, ʻike nā haumāna i ka hana ʻana me ka ʻōnaehana digestive, ʻo lākou nā mōʻī Katolika a ʻōlelo paha i ka ʻōlelo Pelekania me ka pilikia ʻole. Akā, ʻike pū lākou i ke ʻano o ke kanesa. ʻIke lākou i ke ʻano o ka maʻi leukemia kamaliʻi a ʻaʻole paha he mea kupanaha ka huaʻōlelo chemotherapy: ʻike lākou ʻo ia ka lāʻau lapaʻau e hakakā ai i kēia maʻi. A ʻaʻole ʻo ia ke kauka Spanish kaulana loa a mea noiʻi paha nāna i aʻo iā lākou i kēia mau manaʻo hou loa. ʻAʻole. ʻO Alejandra, he haumāna ma ke kikowaena, i ka makahiki 9 i lanakila i ka maʻi maʻi leukemia a ke hōʻike nei i kēia makahiki ma ka paʻi VIII o 'La Vuelta al Cole' i hoʻonohonoho ʻia e ka Fundación UnoEntreCienMil.
"I kēia manawa ua maikaʻi loa au a hauʻoli loa," wahi a ke kaikamahine liʻiliʻi i kēia nūpepa me kahi hilahila akā maopopo iā ia iho, me ka ʻike nui i kona maʻi, "he ʻano maʻi maʻi i ho'ōla ʻia me ka chemotherapy", wehewehe ʻo ia, "he aha pono e hoʻokomo ʻia ʻoe i ka haukapila”.
ʻO Ale, ʻoiai ʻo kāna mau kumu ʻelua, ʻo Ana Velasco lāua ʻo Andrea Sariñana, ke kāhea aloha iā ia, he pule paʻa loa ia no ka mea, i kēia Pōʻalima, ʻOkakopa 28, 650 mau kula mai Sepania a me 260,000 mau keiki e holo nei e hakakā i ka maʻi leukemia kamaliʻi. ʻano maʻi maʻi maʻi maʻamau i waena o nā keiki liʻiliʻi a ʻaʻole hiki i ka 20% o nā mea āpau ke lanakila.
"I kēia mau lā, hele au i nā papa like ʻole e wehewehe ana i ke ʻano o ka heihei aloha 'La Vuelta al Cole' a me ke ʻano o ka leukemia," wahi āna, "a ua nīnau mai lākou iaʻu i nā nīnau he nui. No ka laʻana, ua nīnau mai nā keiki liʻiliʻi iaʻu pehea e hopu ʻia ai kēia fermentation a wehewehe wau iā lākou ʻaʻole ia i hopu ʻia, akā ʻike ʻia a laila, mahalo i ka mālama ʻana, ua hala, "wahi āna me ka maʻamau.
Ua ʻike ʻia ʻo Alejandra i ka maʻi leukemia i ka makahiki 2021. “I kēlā manawa, ʻaʻole maikaʻi ʻo ia. Ua hala ʻo ia i nā lā he nui o ka papa, ua ʻōlelo ʻo ia he ʻeha kona poʻo… ", hoʻomanaʻo ʻo Andrea, ʻo ia kāna kumu i kēlā manawa.
ʻO ka hoʻopaʻa ʻana me ka ʻike ma ka papa
"Ua kākau kona mau mākua e haʻi mai iaʻu i ka maʻi maʻi, kahi o ka hoʻomaha. I ka hoʻi ʻana mai, hoʻonohonoho mākou i nā mea a pau e pono ai ʻo Ale e hoʻopili i ka pūnaewele i kāna mau papa a hiki iā mākou ke hahai liʻiliʻi iā lākou ma kona wikiwiki. Ua hana mākou i mea e hiki ai iā ia ke hoʻomau me kāna mau hoaaloha a hoʻokaʻawale i kāna ʻoiaʻiʻo, mai ka haukapila a mai kona maʻi, "wahi a Andrea.
A laila, ʻo ia hoʻi ka manawa e wehewehe ai i nā keiki i ka hana ʻana i ke kaikamahine liʻiliʻi, ʻaʻole ʻo ia e hele i ke kula i kēia manawa no ka mea pono e ola. "Ua hana mākou i kahi aʻo aʻo i wehewehe ai ʻo ia i ka mea i hana me ka noʻonoʻo akā haʻi iā lākou i ka ʻoiaʻiʻo," i hoʻomanaʻo ai ke kumu. “Ua kamaʻilio mākou e pili ana i ka maʻi leukemia, a ʻoiai i ka wā mua he paʻakikī iā lākou ke hoʻomaopopo, no ka mea, ʻehiku ko lākou mau makahiki, i ko lākou ʻike ʻana iā Ale e pili ana a me kāna haʻi ʻana i nā mea, hoʻomaka lākou e hoʻomaopopo. Huli lākou iā ia."
Holo ʻo Alejandra i ke kahua pāʻani me kāna mau kumu, ʻo Ana (hema) a me Andrea (ʻākau) (luna). Ua hopohopo nā kumu i nā manawa a pau e pili ana i ke kaikamahine liʻiliʻi (ma lalo hema). Ua kū ʻo Alejandra me nā lei gula o ka One Among One Hundred Thousand Foundation (lalo ʻākau) TANIA SIEIRA
“Pono ʻoe e haʻi i ka ʻoiaʻiʻo. A ʻo ia nō. He nui nā nīnau a nā keiki a pono nā pane", wahi a Ana, kā lākou kumu i kēia manawa. "No ka laʻana, ʻo kekahi o nā mea i loaʻa ka hopena nui loa i ka hoʻomaka ʻana o ka lauoho lauoho. ʻAʻole lākou i hoʻohālike i ke kumu i pau ai lākou a wehewehe mākou iā lākou. Ua ʻike lākou iā Ale me ka pāpale, ua hiki mai ka manawa i ʻaʻa ʻo ia e wehe a ʻike lākou iā ia ma ka pūnaewele me ka lauoho ʻole. Akā, ʻaʻole lākou i kāhāhā hou no ka mea he mea ia a lākou i hoʻohui mua ai. A i kona hoʻi ʻana i ke kula i ka lā 4 o Malaki, me ka lauoho pōkole loa, ʻaʻole i ʻike nā keiki. Makemake wale lākou e pūliki iā ia. He mea kāhāhā nui kona hoʻi ʻana mai iā lākou. A hauʻoli loa."
Ma keia kumuhana, pane koke aku o Ale: “Aole au i nana i ke aniani. ʻAʻole wau i makemake, "hoʻomanaʻo ʻo ia. ʻAʻole makemake ʻo ia i kēlā "ulu mop" i hānau ʻia ma hope akā, ua maʻa liʻiliʻi ʻo ia.
He mau nīnau koʻikoʻi nō hoʻi i ia mau lā. “Ua nīnau mai lākou iaʻu inā e make ʻo ia,” ka manaʻo o Andrea, “no ka mea, ua hui pū lākou i ka huaʻōlelo maʻi kanesa me ka make. A ʻaʻole pēlā i nā manawa a pau," wahi a ke kumu.
ka ike a me ka ike
Ua maopopo nā mea ʻelua mai kinohi ʻaʻole lākou e hūnā i kekahi mea a ʻaʻole hoʻi e pale nui iā lākou. A ʻo ia paha ke kī i hoʻomaopopo loa ai nā haumāna o ke kikowaena i kēia maʻi, e pili ana i ka pono o ka hoʻokolokolo ʻana a me ke kumu o ka holo ʻana i kēia Pōʻalima he mea nui no nā mea a pau.
ʻO 'La Vuelta al Cole', ka mea i loaʻa ma mua o 1.700.000 euros, ʻo ia ka neʻe ʻike nui loa i ko mākou ʻāina i ka hakakā ʻana i kēia ʻano maʻi maʻi ʻōpio, i hoʻolālā ʻia e ka Fundación UnoEntreCienMil, no laila, ma ke ʻano hauʻoli a koʻikoʻi. mai nā kula mai ka waiwai o ka lokahi a me ke aloha. E pili ana i nā keiki e kōkua ana i nā keiki. Ma kēia ʻano, hui pū nā lālā a me ko lākou ʻohana i ke kumu o ka hui, e ʻimi nei i ka hoʻōla piha o ka maʻi.
"I ka makahiki i hala ua hala au," wahi a Alejandra. I kēia manawa, akā naʻe, ʻoiai ʻo ia ka "hele ʻana", hōʻoiaʻiʻo ʻo ia e hele ana ʻo ia i ka heihei ma ka pā kula. Eia kekahi, e hoʻohanohano lākou iā Lucía, kekahi haumāna mai ke kikowaena e hele nei i kēia maʻi like. "Makemake au e ʻōlelo mai hopohopo, e hala kēia," wahi a Ale, ka mea i manaʻo e holo pū me ia i ka makahiki e hiki mai ana, a inā makemake ʻo Lucía, hiki iā lākou ke hana i kahi kū lima ma ka paia, kekahi o nā mea a Ale. aloha a ʻaʻole hiki ke hana i kēia mau mahina i hala. Akā i kēia lā ʻae, ke hauʻoli loa ʻo ia.
