Isikolo siqale ngoSeptemba kwaye-uyaqhula-isabelo sakhe asithandayo likhefu. Ngoku akakalubeki unyawo esibhedlele iminyaka emibini, kodwa ubomi bakhe kukunyuka okuphawulwe kukufakelwa kwezintso kabini kunye nokulinda kabini: lowo kwakufuneka alinde, kuqala, ukuze umzimba wakhe ukhule ngokwaneleyo ukuze umelane noxinzelelo. ungenelelo kwaye, okwesibini, unobangela welungu elingaphumeleliyo ekufuneka litshintshwe kwakhona.
Umlo kaValentín (Barcelona, 2014) ubuyela emva kweentsuku ezintlanu emva kokuzalwa kwakhe, xa unina eqaphela ukuba akanako ukuvula iliso elinye. Esibhedlele bafumanisa ukuba unengxaki yokopha ebuchotsheni, balikhupha entloko igazi baze bakwazi ukusindisa ubomi bakhe. Le ngozi yangaphambi kwexesha iya kuphawula isiqalo sobomi bemihla ngemihla obuzinze esibhedlele. Umlo ochasene nokutshatyalaliswa kwemfuza.
UValentine unengxaki ebizwa ngokuba yiDionysius Drash Syndrome, iqaqobana elivalelweyo elichaphazele abantu abangama-200 emhlabeni kuphela. Uyilo lwezintso zakhe lunempazamo. Inebar ehluza inkunkuma kwi-metabolism ewohlokileyo kwaye ilahlekelwe yi-albumin, iprotheni elawula indawo yangaphakathi. Oogqirha bayazi ukuba kungekudala utshintsho luya kuba namalungu ezintso zakhe. Kukho ithemba lokuba akuyi kwenzeka kude kube ngumntwana, kodwa emva kweenyanga ezintathu bayeka ukusebenza ... Udinga ukutshintshwa. ixesha lika-2014.
Unyaka ngamnye ukungenelela kwe-70 yolu hlobo lwenziwa eSpain kwizintso zabantwana kunye nabaselula. Eli nani limela kuphela isi-1.5 ekhulwini sezigulana ezifuna unyango lokubuyisela izintso, ekubeni uninzi lwabantu abadala. UGqr. Gema Ariceta, ugqirha wemithambo-luvo nongugqirha wabantwana kwisibhedlele saseVall d’Hebron, uthi amalungu omzimba abantwana kunzima ngokukhethekileyo ukuwafumana. Ngethamsanqa, inani labaxhasi lincinci kwaye uluhlu lokulinda ludla ngokuba lude.
Njengoko uValentín naye esemncinci kakhulu, akanako utyando. I-catheter ifakwe esiswini sakhe kwaye iqala inkqubo ye-dialysis eya kuhlala iminyaka enesiqingatha. Ubusuku ngabunye, bamdibanisa iiyure ezilishumi elinesibini kumatshini ococa izintso zakhe, ucoca igazi lakhe kwaye uphelise amanzi amaninzi. Akakaqalisi isikolo kwaye abazali bakhe baphilela yena. Bakwangabalinganiswa beli bali.
Ufakelo aluphumelelanga
Xa intso ifika ekugqibeleni, ngo-2017, u-Ariceta wavuma ukungenelela ukulinganisa ukuba i-Valentin encinci yayinzima i-15 kilos. Ufakelo lwabantwana yinkqubo yeqela apho ngaphezulu kwengcali enye inokuthi ithathe inxaxheba kulawulo oluthe ngqo. Nangona kunjalo, kukho i-organ ekhoyo kwisigulane, iqela leenkalo ezininzi zokuqhuba ukukhutshwa, ulwandle eVall d'Hebron ngokwalo okanye ukuhamba ukuya esibhedlele imvelaphi-kwiimeko ezininzi-. Ngaphambi kokuyikhupha, ugqirha okanye ingcali kwilungu elichaphazelekayo liqinisekisile ukufaneleka kwayo ukufakwa. Ngelo xesha, uphando lwentsapho yommkeli, ukuba ngaba unxibelelwano lugcinwa kuyo yonke inkqubo, kwaye ulungiselele igumbi lokuhlinzwa kwisenzo sotyando. Nazi iingcali ezithatha inxaxheba kwi-anesthesia, utyando, abongikazi, i-perfusionists, abancedisi kunye nabaxhasi. Kwakhona iingcali ezivela kwiinkonzo ezifana Clinical Laboratories, Radiology, Izifo ezosulelayo, Immunology, Pathological Anatomy, kaxakeka kunye Pharmacy. Phambi kokuba kuqaliswe inkqubo, iYunithi yoNyango lwaBantwana kunye neBhanki yegazi ziyaziswa ukuba sele zilungile.
Nangona ulungelelwaniso kunye nomzamo weqela, ukutshintshwa kokuqala kukaValentín akuhambanga kakuhle. Xa utshintsha ilungu usengozini yokulahlwa. Ukuphepha oku, isigulane kufuneka sithathe i-immunosuppressants ubomi bonke, okunciphisa impendulo engalunganga yomzimba. Ngokucacileyo oku kunciphisa amandla okuzikhusela omzimba kwaye kwandisa umngcipheko wosulelo. Ngokuchanekileyo, imbangela ye-parvovirus B19 -i-pathogen eqhelekileyo ezikolweni-itshabalalisa i-organ efunyenweyo. Kufuneka siqale phantsi.
Kwiinyanga kamva kuza ubhubhane, imeko ye-alamu kunye noluntu luguqukele phantsi. Yonke into ihambelana nongenelelo lwesibini, oluya kuba lolokugqibela. Abazali bakaValentín baphila mhlawumbi ezona nyanga zinzima kakhulu. Balala betshintshana esibhedlele yaye banyamekela uMatilda, udade omkhulu. Emva kweveki e-ICU, ngobunzima obuthile, izitrato ezishiyiweyo kunye nehlombe ngentsimbi yesi-20:00 ebusuku, ekugqibeleni baya kufikelela kwinto eqhelekileyo ekudala ilindelwe.
Ufakelo lwabantwana olungakumbi eVall d'Hebrón
ISibhedlele seYunivesithi yaseVall d'Hebron e-Barcelona liziko lesibini eSpeyin ukuba libe ngaphezu kwe-1.000 yokufakelwa kwabantwana. Ukususela ngowe-1981, uye waphumelela ukwenza izintso ezingama-442, isibindi ezingama-412, imiphunga engama-85, kunye noqhaqho-fakelo lwentliziyo oluyi-68.
Ndiyabulela kwinkqubela phambili yonyango lotyando lwabantwana abanesifo senhliziyo, kwi-2006 isibhedlele saseCatalan senza i-cardiopulmonary transplant yokuqala yabantwana eSpain. Ukongeza, eli ziko liyinkokeli yofakelo lwemiphunga yabantwana eSpain, lenze iipesenti ezingama-58 zolu ngenelelo phakathi kuka-2016 no-2021.
