Ua hoʻomaka ke kula i ka mahina ʻo Kepakemapa a - ʻakaʻaka ʻo ia - ʻo kāna hana punahele ʻo ka hoʻomaha. I kēia manawa ʻaʻole ʻo ia i heʻe wāwae i ka haukapila no ʻelua mau makahiki, akā ʻo kona ola he piʻi piʻi i hōʻailona ʻia e ka hoʻololi ʻana i ke kīpē pālua a me kahi kali pālua: ʻo ia ka mea e kali ai, ʻo ka mua, no ka ulu ʻana o kona kino e hiki ke pale aku i ka maʻi. a me ka lua, ke kumu o kahi okana hemahema i pono ke pani hou ia.
Ua hoʻi ka hakakā ʻo Valentín (Barcelona, 2014) i ʻelima mau lā ma hope o kona hānau ʻana, i ka ʻike ʻana o kona makuahine ʻaʻole hiki iā ia ke wehe i ka maka hoʻokahi. Ma ka haukapila, ʻike lākou ua loaʻa ʻo ia i ka hemorrhage lolo, hoʻokahe lākou i ke koko mai kona poʻo a mālama i kona ola. ʻO kēia ulia pōpilikia e hōʻailona i ka hoʻomaka o ke ola o kēlā me kēia lā i aʻa i ka haukapila. He kaua kūʻē i ka make genetic.
Ua loaʻa ʻo Valentine i ka mea i kapa ʻia ʻo Dionysius Drash Syndrome, kahi mea liʻiliʻi i hoʻopilikia ʻia i 200 poʻe ma ka honua wale nō. Ua hewa ka hoʻolālā o kona mau puʻupaʻa. Loaʻa iā ia ka pahu e kānana ai i ka ʻōpala mai ka metabolism deteriorated a loaʻa i ka nalowale o ka albumin, ka protein e hoʻoponopono ai i ke kaiapuni o loko. Ua ʻike nā kauka i ka liʻuliʻu a i ʻole ma hope o ka mutation e loaʻa i kāna mau ʻōpū puʻupaʻa. Loaʻa ka manaʻolana ʻaʻole ia e hiki a hiki i ka wā ʻōpio, akā ma hope o ʻekolu mahina e hoʻōki lākou i ka hana ... Pono ʻo ia i kahi transplant. manawa 2014.
ʻO kēlā me kēia makahiki 70 mau hana o kēia ʻano hana i Sepania ma nā puʻupaʻa o nā keiki a me nā ʻōpio. ʻO kēia helu he 1.5 pakeneka wale nō o nā poʻe maʻi e pono ai ka lāʻau lapaʻau renal, no ka mea ʻo ka hapa nui o nā pākeke. Ua ʻōlelo ʻo Kauka Gema Ariceta, he neurologist a pediatrician ma ka haukapila ʻo Vall d'Hebron, he paʻakikī loa ka loaʻa ʻana o nā kino o nā keiki. ʻO ka mea pōmaikaʻi, liʻiliʻi ka helu o nā mea hāʻawi a lōʻihi nā papa inoa kali.
No ka mea ʻuʻuku loa ʻo Valentín, ʻaʻole hiki ke hoʻopaʻa ʻia. Hoʻokomo ʻia kahi catheter i loko o kona ʻōpū a hoʻomaka ʻo ia i kahi kaʻina dialysis e mau ana no nā makahiki a me ka hapa. I kēlā me kēia pō, hoʻohui lākou iā ia no ʻumikūmālua hola i kahi mīkini e hoʻomaʻemaʻe i kona mau puʻupaʻa, hoʻomaʻemaʻe i kona koko a hoʻopau i ka wai nui. ʻAʻole ʻo ia i hoʻomaka i ke kula a ola kona mau mākua nona. ʻO lākou kekahi o kēia moʻolelo.
ʻaʻole hiki ke hoʻololi
I ka hiki ʻana mai o ka puʻupaʻa, i ka makahiki 2017, ua ʻae ʻo Ariceta e komo i ke kaupaona ʻana i ka ʻoiaʻiʻo ʻo Valentin liʻiliʻi he 15 kilos. ʻO ka hoʻololi ʻana i nā keiki he hana pūʻulu kahi i ʻoi aku ma mua o hoʻokahi ʻoihana i komo i ka hoʻokele pololei. Eia nō naʻe, aia kahi okana i loaʻa no ka mea maʻi, kahi hui multidisciplinary e hoʻokō i ka unuhi ʻana, ke kai ma Vall d'Hebron ponoʻī a i ʻole e hele ana i ka haukapila o ke kumu -i ka hapanui o nā hihia-. Ma mua o ka lawe ʻana iā ia, ua hōʻoia ke kauka lapaʻau a i ʻole ka mea lapaʻau i ke kino i nīnau ʻia i kona kūpono no ka implantation. Ma ka manawa like, e noiʻi i ka ʻohana o ka mea i loaʻa, inā mālama ʻia ke kamaʻilio ʻana i ke kaʻina hana, a hoʻomākaukau i ka lumi hana no ka hana ʻoki. Eia nā poʻe loea e komo ana i ka anesthesia, ʻokiʻoki, nā kahu hānai, nā perfusionists, nā kōkua a me nā mea hāʻawi. ʻO nā limahana mai nā lawelawe e like me Clinical Laboratories, Radiology, Infectious Diseases, Immunology, Pathological Anatomy, Emergency and Pharmacy. Ma mua o ka hoʻomaka ʻana i ke kaʻina hana, ua makaʻala ʻia ka Pediatric Intensive Care Unit a me ke koko koko ua mākaukau lākou.
ʻOiai ka hoʻonohonoho ʻana a me ka hoʻoikaika ʻana o ka hui, ʻaʻole holo maikaʻi ka hoʻololi mua ʻana o Valentín. Ke hoʻololi ʻoe i kahi okana e holo ana ʻoe i ka pilikia o ka hōʻole ʻana. No ka pale ʻana i kēia, pono ka mea maʻi e lawe i nā immunosuppressants no ke ola, e hoʻēmi i ka pane maikaʻi ʻole o ke kino. ʻO kēia ka mea e hōʻemi ana i ka hiki ke pale i ke kino a hoʻonui i ka pilikia o nā maʻi. Maikaʻi, ʻo ke kumu o ka parvovirus B19 –he pathogen maʻamau i nā kula– e hoʻopau i ke kino i loaʻa. Pono mākou e hoʻomaka hou.
Ma hope o nā mahina e hiki mai ai ka maʻi maʻi, ua huli ke kūlana o ka ʻala a me ke kaiāulu. Kūlike nā mea a pau me ka hana ʻelua, ʻo ia ka hope. Noho nā mākua o Valentín i nā mahina o ka kānalua nui loa. Moe lākou ma ka haukapila a mālama iā Matilda, ke kaikuaʻana. Ma hope o hoʻokahi pule i loko o ka ICU, me kekahi mau pilikia, nā alanui i haʻalele ʻia a me ka pāpaʻi ʻana i ka hola 20:00 pm, e hōʻea lākou i ka maʻamau i kali ʻia.
ʻOi aku ka hoʻololi ʻana o nā keiki ma Vall d'Hebrón
ʻO ka Hale Hōʻikeʻike ʻo Vall d'Hebron ma Barcelona ʻo ia ka lua o ke kikowaena ma Sepania e loaʻa ma mua o 1.000 mau keiki transplants. Mai ka makahiki 1981, ua hana maikaʻi ʻo ia i 442 kidney, 412 ate, 85 māmā, a me 68 puʻuwai transplants.
Mahalo i ka holomua o ka mālama ʻana i nā keiki me ka maʻi naʻau congenital, i ka makahiki 2006 ua hana ka haukapila Catalan i ka transplant cardiopulmonary pediatric mua ma Sepania. Eia kekahi, he alakaʻi ke kikowaena i ka transplantation lung pediatric ma Sepania, ua hana ʻo 58 ka nui o kēia mau hana ma waena o 2016 a me 2021.
