A watan Satumba ya fara makaranta kuma - ya yi barkwanci - aikin da ya fi so shi ne hutu. Yanzu dai shekara biyu bai taka kafarsa a asibiti ba, amma ransa wani tudu ne wanda aka yi masa dashen koda guda biyu da kuma jira biyu: wanda ya kamata ya ajiye, na farko, jikinsa ya yi girma da zai iya jurewa shiga tsakani. kuma, na biyu, sanadin gazawar gabobi wanda dole ne a sake maye gurbinsa.
Yaƙin Valentin (Barcelona, 2014) ya koma kwanaki biyar bayan an haife shi, lokacin da mahaifiyarsa ta fahimci cewa ba zai iya buɗe ido ɗaya ba. A asibitin sun gano cewa yana fama da zubar jini a kwakwalwa, suka zubar da jinin da ke kansa suka yi nasarar ceto rayuwarsa. Wannan hatsarin da ba a kai ba zai zama farkon wata rana da aka kafe a asibiti. Yaki da halakar kwayoyin halitta.
Valentine na fama da cutar da ake kira Dionysius Drash Syndrome, wasu tsiraru da aka killace wanda ya shafi mutane 200 a duniya kadai. Gine-ginen kodar sa ba daidai ba ne. Yana da mashaya wanda ke tace ragowar gurɓataccen metabolism kuma yana fama da asarar albumin, furotin da ke daidaita yanayin ciki. Likitoci sun san cewa maye gurbi nan ba dade ko ba dade zai sami gabobinsa na koda. Akwai fatan hakan ba zai faru ba har sai lokacin samartaka, amma bayan wata uku sun daina aiki… Yana buƙatar dasawa. kakar 2014.
A kowace shekara, ana aiwatar da ayyukan 70 na irin wannan nau'in a Spain akan kodan yara da matasa. Wannan adadi yana wakiltar kashi 1.5 ne kawai na marasa lafiya waɗanda ke buƙatar maganin maye gurbin koda, tunda yawancin manya ne. Dokta Gema Ariceta, kwararre a fannin jijiyoyin jiki da kuma likitan yara a asibitin Vall d'Hebron, ta ce sassan jikin yara na da wahalar samu musamman. Adadin masu ba da gudummawa - an yi sa'a - ƙanana ne kuma jerin jiran suna ɗaukar tsayi.
Kamar yadda Valentin, haka ma, har yanzu yana da ƙanƙanta, ba za a iya yi masa aiki ba. An dasa catheter a cikin cikinsa kuma ya fara aikin dialysis wanda zai dauki shekaru da rabi. A kowane dare, suna haɗa shi har tsawon sa'o'i goma sha biyu da na'ura mai tsaftace kodarsa, tsaftace jini da kuma cire ruwa mai yawa. Har yanzu bai fara makaranta ba, iyayensa suna masa rayuwa. Su ma jaruman wannan labari ne.
dashi ya kasa
Lokacin da koda a ƙarshe ya isa, a cikin 2017, Ariceta ta yarda ta shiga tsakani don auna wannan ƙaramin Valentin da kyar ya auna kilo 15. Dashen yara tsari ne na gamayya wanda ƙwararru fiye da ɗaya na iya shiga cikin gudanarwa kai tsaye. Duk da haka, akwai wata gabo da ake samu ga majiyyaci, ƙungiyar ma'aikata da yawa don yin hakar, teku a cikin Vall d'Hebron kanta ko tafiya zuwa asibiti na asali - a mafi yawan lokuta-. Kafin a fitar da shi, likitan fiɗa ko ƙwararre a cikin sashin da ake tambaya ya tabbatar da dacewarta don dasawa. A lokaci guda, bincika dangin mai karɓa, idan ana kiyaye sadarwa a duk lokacin aikin, kuma shirya ɗakin tiyata don aikin tiyata. Anan mahalarta ƙwararru ne daga maganin sa barci, tiyata, ma'aikatan jinya, masu yin lalata, mataimaka da masu samarwa. Hakanan ƙwararru daga ayyuka kamar Laboratories na Clinical, Radiology, Cututtuka masu Yaduwa, Immunology, Jiyya na Jiki, Gaggawa da Pharmacy. Kafin fara aikin, ana sanar da Sashen Kula da Lafiyar Yara na Yara da Bankin Jini don su shirya.
Duk da haɗin kai da ƙoƙarin ƙungiyar, dashen farko na Valentin ya ci tura. Lokacin da kuka maye gurbin sashin jiki, kuna fuskantar haɗarin ƙi. Don kauce wa wannan, mai haƙuri dole ne ya dauki magungunan rigakafi don rayuwa, wanda ke rage mummunar amsawar jiki. Wannan a fili yana rage ƙarfin kariya na jiki kuma yana ƙara haɗarin kamuwa da cuta. Daidai, wani dalili ta hanyar parvovirus B19 - mai cutarwa na kowa a makarantu - yana lalata sashin da aka karɓa. Dole ne mu sake farawa.
Bayan watanni sai annobar ta zo, yanayin tashin hankali da kuma al'umma. Komai yayi daidai da shiga tsakani na biyu, wanda zai zama na ƙarshe. Wataƙila iyayen Valentin suna fuskantar watanni na rashin tabbas mafi girma. Suna kwana a asibiti kuma suna kula da Matilda, ƙanwar. Bayan mako guda a cikin ICU, tare da wasu matsaloli, titin da ba kowa da kowa da kuma tafi da karfe 20:00 na yamma, a ƙarshe za su kai ga al'ada da aka dade ana jira.
Ƙarin dashen yara a cikin Vall d'Hebrón
Asibitin jami'ar Vall d'Hebron a Barcelona shine cibiya ta biyu a Spain da ta wuce dashen yara 1.000. Tun a shekarar 1981, ya yi nasarar yin aikin koda guda 442, hanta 412, huhu 85 da dashen zuciya 68.
Godiya ga ci gaban aikin tiyata na yara masu fama da cututtukan zuciya, a cikin 2006 asibitin Catalan ya yi dashen zuciya na farko na yara a Spain. Bugu da kari, cibiyar ita ce jagora a aikin dashen huhun yara a Spain, bayan da ta yi kashi 58% na wadannan ayyukan tsakanin 2016 da 2021.
