Sukulu idayamba mu Seputembala ndipo -amachita nthabwala - ntchito yomwe amakonda kwambiri ndi nthawi yopuma. Tsopano sanapondapo phazi m'chipatala kwa zaka ziwiri, koma moyo wake ndi kukwera phiri komwe kumadziwika ndi kuikidwa kwa impso ziwiri ndikudikirira kawiri: komwe adayenera kudikirira, choyamba, kuti thupi lake likule mokwanira kuti lipirire. kulowererapo ndipo, chachiwiri, chifukwa cha chiwalo cholephera chomwe chinayenera kusinthidwanso.
Nkhondo ya Valentín (Barcelona, 2014) imabwerera kumasiku asanu atabadwa, pamene amayi ake amazindikira kuti sangathe kutsegula diso limodzi. Atafika kuchipatala azindikira kuti akudwala matenda otaya magazi muubongo, amachotsa magazi m'mutu mwake ndikupulumutsa moyo wake. Ngozi yofulumirayi idzakhala chiyambi cha moyo watsiku ndi tsiku wokhazikika m'chipatala. Nkhondo yolimbana ndi kuwonongeka kwa majini.
Valentine amadwala matenda otchedwa Dionysius Drash Syndrome, ochepa okha omwe amakhudza anthu 200 padziko lapansi lokha. Kapangidwe ka impso zake ndi kolakwika. Lili ndi thabwa lomwe limasefa zinyalala kuchokera ku kuwonongeka kwa metabolism ndipo limataya albumin, puloteni yomwe imayang'anira chilengedwe chamkati. Madokotala amadziwa kuti posakhalitsa kusinthako kudzakhala ndi ziwalo za impso. Pali chiyembekezo chakuti sichidzachitika mpaka unyamata, koma patatha miyezi itatu amasiya kugwira ntchito ... Akufunika kumuika. nthawi ya 2014.
Chaka chilichonse njira za 70 zamtunduwu zimachitika ku Spain pa impso za ana ndi achinyamata. Chiwerengerochi chikuimira 1.5 peresenti yokha ya odwala omwe amafunikira chithandizo cha aimpso, popeza ambiri ndi achikulire. Dr. Gema Ariceta, katswiri wa matenda a mitsempha ndi ana pachipatala cha Vall d’Hebron, akuti ziwalo za ana zimakhala zovuta kwambiri kupeza. Mwamwayi, chiwerengero cha opereka ndalama ndi chochepa ndipo mindandanda yodikirira imakhala yayitali.
Popeza Valentín nayenso akadali wamng'ono kwambiri, sangathe kuchitidwa opaleshoni. Catheter imayikidwa m'mimba mwake ndipo akuyamba njira ya dialysis yomwe imatha zaka ndi theka. Usiku uliwonse, amamulumikiza kwa maola khumi ndi awiri ku makina omwe amatsuka impso zake, kuyeretsa magazi ake ndi kuchotsa madzi ochulukirapo. Sanayambe sukulu ndipo makolo ake amamukhalira. Iwonso ndi odziwika bwino a nkhaniyi.
kumuika analephera
Impso ikafika, mu 2017, Ariceta adavomera kuti ayesetse kuti Valentin wamng'ono anali wolemera 15 kilos. Kuika ana ndi ndondomeko yamagulu yomwe akatswiri oposa mmodzi angakhale atagwira nawo ntchito yoyang'anira mwachindunji. Komabe, pali chiwalo kupezeka kwa wodwala, gulu multidisciplinary kuchita m'zigawo, nyanja mu Vall d'Hebroni palokha kapena kupita kuchipatala chochokera - nthawi zambiri-. Asanayambe kuchichotsa, dokotala wa opaleshoni kapena katswiri wa chiwalocho anatsimikizira kuti ndi choyenera kuyika. Panthaŵi imodzimodziyo, fufuzani banja la wolandirayo, ngati kulankhulana kumasungidwa m’njira yonseyo, ndi kukonzekera chipinda chochitira opaleshoniyo. Nawa akatswiri omwe akuchita nawo opaleshoni, opaleshoni, anamwino, operekera mafuta, othandizira ndi opereka chithandizo. Komanso akatswiri ochokera kuzinthu monga Clinical Laboratories, Radiology, Matenda Opatsirana, Immunology, Pathological Anatomy, Zadzidzidzi ndi Pharmacy. Asanayambe ntchitoyi, a Pediatric Intensive Care Unit ndi a Blood Bank amadziwitsidwa kuti ali okonzeka.
Ngakhale kuti gululi likugwirizanitsa ndi kuyesetsa, kuyika koyamba kwa Valentín sikukuyenda bwino. Mukalowa m'malo mwa chiwalo mumakhala pachiwopsezo chakukanidwa. Pofuna kupewa izi, wodwalayo ayenera kumwa ma immunosuppressants moyo wonse, omwe amachepetsa kuyankha koyipa kwa thupi. Izi mwachiwonekere zimachepetsa mphamvu yodzitetezera ya thupi ndikuwonjezera chiopsezo cha matenda. Ndendende, chifukwa cha parvovirus B19 - tizilombo toyambitsa matenda m'masukulu - timawononga chiwalo cholandilidwa. Tiyenera kuyambiranso.
Miyezi pambuyo pake kumabwera mliri, mkhalidwe wa mantha komanso anthu adasintha. Chilichonse chikugwirizana ndi kulowererapo kwachiwiri, komwe kudzakhala kotsiriza. Makolo a Valentín mwina akukhala miyezi yovuta kwambiri. Amagona mosinthanasinthana kuchipatala ndipo amasamalira Matilda, mlongo wamkulu. Pambuyo pa sabata ku ICU, ndi zovuta zina, misewu yopanda anthu komanso kuwomba m'manja nthawi ya 20:00 p.m., afika pachimake chomwe chakhala chikuyembekezeredwa kwanthawi yayitali.
Kuika ana ambiri ku Vall d'Hebrón
Chipatala cha Vall d'Hebron University ku Barcelona ndi malo achiwiri ku Spain kukhala ndi opitilira 1.000 opangira ana. Kuyambira 1981, wachita bwino 442 impso, 412 chiwindi, 85 mapapo, ndi 68 mtima transplants.
Chifukwa cha kupita patsogolo kwa chithandizo cha opaleshoni ya ana omwe ali ndi matenda a mtima obadwa nawo, mu 2006 chipatala cha Catalan chinachita opaleshoni yoyamba ya ana ku Spain. Kuphatikiza apo, likululi ndi mtsogoleri pakuika ana m'mapapo ku Spain, atachitapo 58 peresenti ya izi pakati pa 2016 ndi 2021.
